Hi everyone
You might have noticed I’ve been pretty inactive for a long, long loooong time. I wanted to give you an update on what’s been going on my end. At the end of 2018, I finally got the good news I was waiting for. I had a meeting with the head of the complex needs service and we discussed that I had been trying to access DBT for some time; with no luck. Until recently that therapy had not been available in my area. She told me that DBT was now being provided on the NHS where I live and she said she would be referring me. She said she felt it was the right treatment for me and it would really help finally take back control of my life.
I will write in more detail about this in a longer post about the process I’ve had to go through. But just to say I have had to fight tooth and nail to get this life-changing recommended treatment and I think that’s appalling. I am someone who is often able to pull together the motivation to get up and argue about a decision in my care. But, I often worry about others who aren’t able to do this, or haven't got a good support network behind them. After I threatened a complaint for poor service and a failure to follow the NICE guidelines on BPD treatment, they finally allowed me into the DBT group. I still don’t know when this will be starting, but I should receive a letter before the end of December. Fingers crossed I don’t have to make any more fuss, because I’m exhausted.
Thank you for being patient with me whilst I get myself recovered from all this stress. My friends, family and supporters have all been excellent too.
I’m hoping to get back to work on my blog posts at the end of next week. Also I’m looking to write about the political situation here in the UK (with the upcoming general election) and how it affects people with disabilities.
More stuff coming soon.
Out of Darkness. Xx
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